CdLS Connections

← CdLS Connections8 jun 2025 · 42 min

Ep.#12 - 💜 Family Series: Edgar Solis - A Father's Story - Daniel

Ep.#12 - 💜 Family Series: Edgar Solis - A Father's Story - Daniel8 jun 202542 min

A fellow CdLS dad, Gary sits down with Edgar to hear a father's perspective on having a child with Cornelia de Lange Syndrome (CdLS). Edgar, originally from Mexico, is the father of Daniel, a young boy with CdLS. Edgar shares his story of meeting his wife Ulzi, starting a family, moving across continents from Mongolia, back to Mexico and to Switzerland. He shares his journey with receiving the diagnosis, his role as a father and the challenges on accepting the diagnosis, the impact on their m...