
β CdLS Connections8 Oct 2024 Β· 26 min
Ep.#9 - π Family Series: Emily Turner - Brave Heart - Warrior Spirit
Ep.#9 - π Family Series: Emily Turner - Brave Heart - Warrior Spirit
Join us for a conversation with Emily Turner at the recent US CdLS Foundation Eastern retreat in Oxford, Pennsylvania. Emily shares her journey to independence and her current life with her dog living in a tiny house. Emily describes how she has overcome challenges and provides wisdom that we can all learn from. During the retreat, Emily finally received a definitive molecular diagnosis of NIPBL after decades of searching. She shares the importance of the CdLS community to her and what it mea...