About this podcast
Join us each month to listen and learn from the experts – people living with rare conditions. We’ll discuss the challenges and triumphs of life with a rare genetic condition and hear from scientists working to develop new medicines. Honest conversations with the rare community, led by the patient advocacy team at BridgeBio. Subscribe below to catch each episode as it goes live.
50 episodes · science
On Rare
About this podcast
Join us each month to listen and learn from the experts – people living with rare conditions. We’ll discuss the challenges and triumphs of life with a rare genetic condition and hear from scientists working to develop new medicines. Honest conversations with the rare community, led by the patient advocacy team at BridgeBio. Subscribe below to catch each episode as it goes live.
Recent episodes
- "We're here for a good time, not a long time" – Ashley is Living with EPP29 Jul · 38 min
- “He Gives Everything a Go” — Elliott, Living with MOCD Type A3 Jun · 31 min
- On Rare: Arielle's Long Diagnostic Journey27 Mar · 47 min
- On Rare Innovators: Kat Bryant Knudson and Reimagining Collaboration — “It’s Our Table”5 Mar · 39 min
- Another Year of Purpose and Progress: On Rare Looks Back at 20259 Jan · 37 min
- On Rare Innovators: Carmen Alonso y la fundación de ALPE - "El amor que das, lo recibes de vuelta"8 Jan · 48 min
- On Rare Innovators: Nasha Fitter is Redefining the Rare Disease Playbook – “Who says we can’t do this?”10 Dec 2025 · 44 min
- "It’s good to be alive." Greg is living with LMNA cardiomyopathy6 Nov 2025 · 40 min
- On Rare Innovators: Carmen Alonso and the Founding of ALPE - "The Love You Give, You Receive Back"10 Oct 2025 · 42 min
- “I’m still very grateful for the life that I’ll have.” Cerys is living with Limb-Girdle Muscular Dystrophy type 2i/R94 Sept 2025 · 39 min
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