
← MOM TALK29 apr · 36 min
Victoria's PAH Update
<p>Victoria shares an update on her PAH after months of worsening shortness of breath, chest pain, palpitations, and fatigue. Even though her January echo looked promising and labs were normal, her specialist ordered a right heart cath with a nitric oxide challenge, and she was a responder. Her doctor called with great news: her pressure is 27, and her heart shows no signs of heart failure, and she thinks Victoria may be overmedicated, so she's cutting her tadalafil dose in half. She's grateful but still anxious because her symptoms haven’t fully improved yet, with a two-week nurse check-in and a follow-up appointment in June.</p><p>00:00 Welcome and Update</p><p>00:26 What PAH Means</p><p>02:41 Diagnosis Delays</p><p>04:59 Stabilizing on Treatment</p><p>06:13 Right Heart Cath Explained</p><p>08:17 Vasoreactivity Breakthrough</p><p>09:23 New Meds and Low BP</p><p>10:31 Symptoms Creeping Back</p><p>13:35 January Tests and Monitor</p><p>15:44 March Labs and Cath Scheduled</p><p>17:57 Spiraling Before Procedure</p><p>19:22 Mom Guilt Morning Prep</p><p>20:00 Heart Cath Setup</p><p>20:21 Awake Neck Procedure</p><p>22:42 Nitric Oxide Results</p><p>24:34 Discharge And Sick Ride</p><p>26:21 Great News Med Cutback</p><p>27:25 Symptoms Vs Numbers</p><p>31:16 Faith And Advocacy Call</p><p>33:41 One Week Update Next Steps</p><p>35:50 Closing Thanks And Follow<br></p>