← Patient Empowerment Program: A Rare Disease Podcast6 mei · 1 u 05 min
Realizing Hope for Layken
A nano rare diagnosis reshapes an entire family.
In Realizing Hope for Layken, Stan Crooke speaks with Callan Pleasant about her daughter Layken and their journey with HNRNPH2.
Callan shares the early signs, the long road to diagnosis, and what it takes to navigate care while holding onto hope. Through n-Lorem, Layken’s story is moving forward with new possibility.
Listen to the full conversation with Callan Pleasant.
Show Notes:
1:20 – Introduction of special guest Callan Pleasant and her family, namely her daughter Layken
3:50– Parenthood and speed bumps
7:30 – First medical consultation regarding Layken
9:30 – No such thing as a lazy baby. A second look at Layken
10:40 – Finding a diagnosis: HNRNPH2
13:50 – Feeling alone after realizing Layken has a nano-rare disease
16:30 – Managing frustrations and blaming themselves
podlinkr.com/patient-empowerment-program-a-rare-disease-podca/39072439977521
Voor op een poster of slide.