Patient from Hell

← Patient from Hell31 jul · 26 min

“If You Have Lungs, You Can Get Lung Cancer” | Early Detection, Screening Cost & Stigma | Shira Boehler

“If You Have Lungs, You Can Get Lung Cancer” | Early Detection, Screening Cost & Stigma | Shira Boehler31 jul26 min

<p>Shira Boehler's family is full of doctors, and every one of them told her not to get the full-body MRI. She canceled the appointment repeatedly herself, until her husband rebooked it one time too many and she finally went.</p><p><br /></p><p>The scan found a 3.8 centimeter mass in her right lung and labeled it a minor finding, with a note to correlate with symptoms. She had none. She was running six miles a day, the picture of health, and had never smoked. A follow-up CT months later showed the mass had grown, and on the Monday she walked into a pulmonary specialist's office she was told she had an invasive adenocarcinoma. She told him it was probably an EMR error. One week later, surgeons removed half her right lung to treat her cancer.</p><p><br /></p><p>Samira Daswani, host of Patient from Hell and founder of Manta Cares, welcomes lung cancer survivor and bestselling author Shira Boehler for an eye-opening conversation on the part that comes after the story, which is why almost nobody in Shira's position gets caught this early. Screening guidelines currently cover people over 50 with a twenty-pack-per-year smoking history, and fewer than one in five of them actually get scanned, in part because the criteria require disclosing something patients are ashamed of. Shira has been working the problem from both ends since her treatment, negotiating cash prices at imaging centers down to a fraction of what she paid and funding new scans for people who can't cover them through the nonprofit organization she founded, Cancer Doesn't Care.</p><p><br /></p><p>In this episode, Samira and Shira discuss:</p><ul><li><p>Why lung cancer is often diagnosed too late</p></li><li><p>The importance of early detection and low-dose CT screening</p></li><li><p>How people who have never smoked can still develop lung cancer</p></li><li><p>The stigma surrounding lung cancer diagnosis</p></li><li><p>Current lung cancer screening guidelines</p></li><li><p>Insurance coverage, healthcare access, policy reform</p></li><li><p>How artificial intelligence may improve cancer screening</p></li><li><p>Why patient advocacy is becoming increasingly important in modern healthcare</p></li></ul><p><br /></p><p>Chapters</p><p>00:00 Introduction</p><p>01:00 The Full-Body Scan That Changed Everything</p><p>03:32 Diagnosed With Lung Cancer Despite Having No Symptoms</p><p>05:30 Access, Privilege &amp; Why Early Detection Isn't Equal</p><p>07:10 Building the Cancer Doesn't Care Foundation</p><p>09:21 Why Lung Cancer Screening Needs to Change</p><p>10:19 Breaking the Stigma Around Lung Cancer</p><p>12:26 Who Actually Qualifies for Screening?</p><p>14:23 Changing Public Perception Through Advocacy</p><p>16:20 Why Patients Must Advocate for Themselves</p><p>17:15 AI, False Positives &amp; the Future of Cancer Screening</p><p>20:27 Why Lung Cancer Is Often Diagnosed Too Late</p><p>21:17 Stage 1 vs. Stage 4 Survival Rates</p><p>23:25 Shira's Advice for Anyone Considering Lung Cancer Screening</p><p><br />Shira Kupperman Boehler is a finance professional, health advocate, bestselling author, and lung cancer survivor. Shira holds a degree in Molecular and Cell Biology from the University of California, Berkeley, and an MBA from New York University’s Stern School of Business. Alongside her husband Adam, she has spent her career building and scaling multibillion-dollar healthcare businesses, developing deep relationships across health systems, payers, and policymakers.<br />After being unexpectedly diagnosed with Stage 1B lung adenocarcinoma despite never smoking and having no symptoms, Shira founded Cancer Doesn't Care, a nonprofit dedicated to expanding access to life-saving lung cancer screening and reducing financial barriers to early detection. She is also the author of the bestselling memoir <em>One Scan Saved My Life</em>, with proceeds supporting patient screening initiatives.<br /></p><p><br /></p><p>🔗 Connect with Patient From Hell</p><p>Website: https://www.mantacares