Beyond the Build – A Rare Journey with Ines and James

<p>In this heartfelt episode of <em>Product Pals</em>, Charlotte and Kiet sit down with design lead <strong>James Riddell</strong> and product leader <strong>Ines Goluza</strong>, the inspiring team behind <em>Rare Journey</em> — an AI-powered health companion app built to support families navigating rare diseases.</p><p>After the birth of his son Felix and his diagnosis with the ultra-rare Myhre Syndrome, James, along with his partner Ivana and sister-in-law Ines, channelled their personal experience into building <em>Rare Journey</em> and co-founding the <em>Myhre Syndrome Foundation Australia</em>. What began as a family crisis quickly became a bold mission to support others through empathy-driven tech.</p><p>💡 What you’ll hear:</p><ul><li><p>Felix’s diagnosis and the origin of Rare Journey</p></li><li><p>Why community knowledge is a superpower in healthcare</p></li><li><p>Building under pressure: hospital rooms to MVP in 6 months</p></li><li><p>Applying product and design thinking in the real world</p></li><li><p>Reflections on scaling, funding, and staying mission-led</p></li></ul><p>To find out more about their stories visit:</p><ul><li><p>Myhre Syndrome Foundation Website:<a href="https://myhresyndromeaus.org/"> <u>⁠https://myhresyndromeaus.org/⁠</u></a> </p></li><li><p>Rare Journey:<a href="https://www.therarejourney.com/"> <u>⁠</u></a><a href="https://www.therarejourney.com/%E2%81%A0"><u>https://www.therarejourney.com/⁠</u></a></p></li></ul><p>Other Resources:</p><ul><li><p>Ronald McDonald House Foundation <a href="https://rmhc.org.au/"><u>https://rmhc.org.au/</u></a></p></li></ul><p><br></p>