Go Ada & Ford. Fundraise now. #CTRPoll Do it now. Porter’s Sib Story. ORCA Study soon! #S10e214

Monday, August 10, 2026 - Week 33

Make sure to watch #S10e213 first! https://www.linkedin.com/posts/curesyngap1_camp4-trial-approved-in-australia-argentina-activity-7491598254027984896-wWTg145 done!  Out of 516 in US per last census: (https://www.linkedin.com/posts/curesyngap1_syngap1census-syngap1-census-activity-7478070129340215296-6Hjx)

CLINICAL TRIAL READINESS SURVEY - http://curesyngap1.org/CTRpoll

Do it now, let us figure out the state of our community.

CITIZEN Sign up now! https://www.citizen.health/ai-advocate/syngap1

Everyone with a sick kid needs this.

Different from CONNECT: https://curesyngap1.org/curesyngap1connect

Make sure we know how to reach you.

STUDIES ARE HAPPENING

- Albus, thank you to those families. Plug it in.- Combi[o]mics - Thank you for doing this if invited.- Everyone will get an invite to do an ORCA Validation Study, please do this.  If you don’t get that email by end of August, bug us.  We are only inviting those we can confirm have a mutation.

PERSONAL FUNDRAISERSFundraisers advance our mission & help you connect to community

#ForAda curesyngap1.org/forada is over $104k of $10k