Let's Talk About The POTS life

← Let's Talk About The POTS life30. Juni · 52 Min.

Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care

Dr. Marie-Claire Seeley on POTS, EDS & Changing the Future of Care30. Juni52 Min.

<p>Dr. Marie-Claire Seeley is a registered nurse, researcher, Founder and Volunteer CEO of the Australian POTS Foundation, and one of the leading voices advancing POTS research, education, and advocacy.</p><p>In this episode of <em>Let&#39;s Talk About the POTS Life</em>, Kelsey sits down with Dr. Seeley to discuss her journey from developing POTS after a post-viral illness in 1993 to helping change the future of care for people living with POTS and dysautonomia around the world.</p><p>Together, they discuss:</p><ul><li>Dr. Seeley&#39;s personal journey with POTS</li><li>Why so many patients are dismissed or misdiagnosed</li><li>The connection between POTS, Ehlers-Danlos syndrome (EDS), and hypermobility</li><li>Why women with POTS often face unique challenges in healthcare</li><li>Why we&#39;re experiencing an &quot;epidemic of recognition,&quot; not an epidemic of POTS</li><li>The future of POTS research, advocacy, and patient care</li></ul><p>Whether you&#39;re newly diagnosed or have been living with POTS for years, this conversation offers insight, validation, and hope from someone who understands the condition from every perspective as a patient, clinician, researcher, and advocate.</p><p><strong>Learn more about the Australian POTS Foundation:</strong> <a href="https://potsfoundation.org.au" target="_blank" rel="ugc noopener noreferrer">https://potsfoundation.org.au</a></p><p><br></p><p><strong>Connect with Us:</strong></p><p><a href="https://thepotslife.com/">⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠Our Website⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠</a></p><p>Facebook: <em>The POTS Life</em></p><p>Instagram: @thepotslife_</p><p>Tik Tok: <em>thepotslife</em></p>