Men, Rare Disease, and the Mental Health No One Talks About

take on men. The host speaks with Dave Hogan, a rare disease advocate who was diagnosed himself and later created a global support group specifically for men living with rare diseases or caring for loved ones who do. Dave shares how grief, isolation, and uncertainty after diagnosis pushed him to seek community, and why traditional support spaces often fail men who are expected to “just get on with it.” The conversation covers why men are less likely to access mental health resources, how grou...