Ep106: Behavior, Advocacy, Siblings: Celebrating 2 Years of Podcasting

PWS United is celebrating 2 years of podcasting! With over 100 episodes, there's a lot to celebrate! This week's episode is a look back at the previous year of episodes (check out EP56: Celebrating One Year of Podcasting | PWS United for a look at the first year of episodes). From sibling advocacy, a personal look at single caregiving, and advice from PWS dads, to behavior and cognitive functioning, PWS research, rare pharmacies, and the inspiring world of PWS advocacy, this episode highlights the incredible work of families, caregivers, professionals, volunteers, and staff in seeking to improve the lives of and empower those living with Prader-Willi syndrome.

Links to episodes highlighted:

Ep60: Rockie Penta: Caregiver, Roommate, Best Friend | PWS United

Ep62: Teaching Emotional Regulation in Individuals with PWS: ABA Strategies for Lasting Success | PWS United

Ep67: Broken Systems, Enduring Love, Single Caregivers Series | PWS United

Ep75: Global PWS Registry 2.0 | PWS United

Ep84: Welcoming PWSA | USA's Equity Committee | PWS United

Ep88: What is a Rare Pharmacy? How PWS Families Receive Care Through PANTHERx | PWS United

Ep92 Ask Nurse Lynn: Behavior and Psychiatric Issues | PWS United

Ep94 Advocacy is Everything: 2026 DC Fly-In Recap | PWS United

Ep97 Father's Day Special: Two PWS Dads, Two Events, One Powerful Mission | PWS United

Ep101: Transitioning PWS to Adulthood | PWS United