About this podcast
On the CDKL5 in Color podcast you'll hear co-hosts Marissa & Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights. Our goal? To weave a tapestry of vibrant community stories. Have a CDKL5 story to share? Get in touch!
45 episodes · society
CDKL5 in Color
About this podcast
On the CDKL5 in Color podcast you'll hear co-hosts Marissa & Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights. Our goal? To weave a tapestry of vibrant community stories. Have a CDKL5 story to share? Get in touch!
Recent episodes
- Episode 43: Exploring Caregiver Guilt (Part 2)1 Jun · 34 min
- Episode 42: Exploring Caregiver Guilt (Part 1)1 Jun · 29 min
- Episode 41: Michal’s Life with Natalia (age 5)23 May · 29 min
- Episode 40: Let's Talk About Moments of Joy9 May · 24 min
- Episode 39: Let’s Just Chat!25 Apr · 29 min
- Episode 38: Aditi’s Life with Ria (age 6)12 Apr · 36 min
- Episode 37: Let’s Talk About Gene Therapy28 Mar · 29 min
- Episode 36: Let’s Talk About Bathing Our Kids14 Mar · 29 min
- Episode 35: AI Chat with Cure5 Co-Founder Andreas Borg28 Feb · 33 min
- Episode 34: Kim’s Life with LilyAnna (age 23)14 Feb · 31 min
podlinkr.com/en/cdkl5-in-color
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