Episode 38: Aditi’s Life with Ria (age 6)

<p><strong>Episode 38: Aditi’s Life with Ria (age 6)</strong></p><p>Parenthood changes us, no question, but the adjustments we make when parenting a child with medical complexities and disabilities takes the experience to another level. In this latest episode, you’ll hear Aditi’s experiences raising her feisty eldest daughter, Ria, who lives with CDKL5 Deficiency Disorder. We talk about the intensities of caregiving and the impact this life has on siblings, including worries about the future. We also explore the benefits of finding a school program that works, the need for more support at home for a high-energy child, and the lack of spaces where families can be comfortable and happy as a whole unit.</p><p>Thanks for joining us, Aditi!</p><p><br /></p><p><strong>SHOW NOTES</strong></p><p>Check out our website and sign up for our quarterly newsletter at <a href="http://www.cdkl5incolor.com" rel="ugc noopener noreferrer" target="_blank"><strong>www.CDKL5inColor.com</strong></a></p><p>Follow us @CDKL5inColor on Instagram, Facebook, LinkedIn, Blue Sky, &amp; YouTube!</p><p>Email us to be on the show! <a href="mailto:CDKL5inColor@gmail.com" rel="ugc noopener noreferrer" target="_blank">CDKL5inColor@gmail.com</a></p><p>Thank you to our 2026 Airwave Ally Sponsor - <a href="https://www.ucb-usa.com/Patients" rel="ugc noopener noreferrer" target="_blank">UCB Pharma</a>!</p><p><br /></p><p><strong>LINKS:</strong></p><p><a href="https://my.clevelandclinic.org/health/treatments/25197-applied-behavior-analysis" rel="ugc noopener noreferrer" target="_blank"><strong>ABA Therapy - Applied Behavior Analysis</strong></a></p><p><a href="https://health.clevelandclinic.org/glass-child" rel="ugc noopener noreferrer" target="_blank"><strong>Article: Always Coping, Rarely Seen: Explaining Glass Child Syndrome</strong></a></p><p><a href="https://open.spotify.com/episode/1F9GT01rOn1GEczj1Qhoj2?si=Xmi8H3-xSqy_Aa0MELIhTg" rel="ugc noopener noreferrer" target="_blank"><strong>Episode 3: Rachel’s Life with Mimi</strong></a></p><p><a href="https://www.caregiver.org/resource/taking-care-you-self-care-family-caregivers/" rel="ugc noopener noreferrer" target="_blank"><strong>Article: Taking Care of YOU: Self-Care for Family Caregivers</strong></a></p><p><br /></p>