You Can Influence the Journey: Tina Jackson on Rare Disease, Radical Advocacy, and Raising Miss T

Tina Jackson was told her daughter Tionna - Miss T - most likely wouldn't survive. Born in 1995 with trisomy 8 mosaicism, a rare genetic condition, Miss T was labeled failure to thrive. She's now thirty years old, living independently, completing a hospital internship, and co-presenting keynote speeches with her mom. In this episode, Tina shares three decades of rare disease caregiving - including the 2022 hospitalization that landed Miss T on life support, and how CaringBridge helped Tina ho...