The Chronic Truth

← The Chronic Truth19 Jun · 31 min

"FAP Is So Much More Than the Colon"

"FAP Is So Much More Than the Colon"19 Jun31 min

<p>Jenny Jones is back, and a lot has changed. Since her last visit, she lost her mother to FAP complications, launched Life's Apolyp Foundation as a 501 (c) (3) nonprofit, and is correcting the record on something she got wrong last time: FAP is not just a colon disease. It's a whole-body condition that can show up in the eyes, skin, teeth, liver, and more, and the gaps in that understanding are delaying diagnosis and putting families at risk. This conversation covers the foundation, the research funding gap, the APC gene, and what it looks like to build a legacy out of grief.         <br /><strong><br /></strong>CHAPTERS / TIMESTAMPS <br /><br />00:00 Introduction to Chronic Truth Podcast<br />00:47 Understanding FAP and Its Gaps<br />09:13 The Launch of Life's Apollop Foundation<br />16:04 Community and Advocacy for FAP Patients<br />24:48 Future Goals for Life's Apollop Foundation<br /><br /></p><p><strong>CONNECT &amp; RESOURCES<br /><br />Jenny Jones:<br /></strong> 🌐 <a href="https://lifesapolyp.org" rel="noopener noreferrer nofollow">lysapolyp.org</a> <br /> </p><p><strong>The Chronic Truth Podcast:<br /></strong> <br />🌐 Website: <a href="https://chronictruthpodcast.com" rel="noopener noreferrer nofollow"><strong>chronictruthpodcast.com</strong></a><br /> 📱 Instagram: <a href="https://www.instagram.com/chronictruthpodcast" rel="noopener noreferrer nofollow"><strong>@ChronicTruthPodcast</strong></a><br /> 📘 TikTok: <a href="https://www.tiktok.com/@chronictruthpodcast" rel="noopener noreferrer nofollow"><strong>@chronictruthpodcast</strong></a><br /> 💬 Share Your Story: <a href="https://chronictruthpodcast.com/#testimonials" rel="noopener noreferrer nofollow"><strong>Testimonials</strong></a><br /><strong>📋 </strong>Community Survey: <a href="https://chronictruthpodcast.com/#survey" rel="noopener noreferrer nofollow"><strong>Survey</strong></a><strong><br /><br /></strong>Production Partner:<strong> </strong><a href="https://podcastmechanic.xyz" rel="noopener noreferrer nofollow"><strong>Podcast Mechanic</strong></a></p>