The Handicapable Podcast

← The Handicapable Podcast5 Mar · 36 min

The Handicapable Podcast: S3 E4: Destroy Duchenne

The Handicapable Podcast: S3 E4: Destroy Duchenne5 Mar36 min

<p>On today&#39;s episode, Adam has a conversation with Elijah Stacy, founder of the nonprofit Destroy Duchenne, which he started at just 15 years old after learning the average lifespan for Duchenne and deciding he wasn’t going to accept that as the end of the story. Elijah breaks down gene therapy versus gene editing in a way that’s easy to understand, explains why safe delivery is one of the biggest hurdles, and shares what advancements he’s most hopeful about right now. We also talk advocacy, the reality of the “disability tax,” and why supporting families today matters just as much as pushing for breakthroughs tomorrow.</p><p>Intro music by Pat Moeschen</p><p><br></p><p>The Handicapable Network: <a href="www.hcmedia.org" target="_blank" rel="noopener noreferer">www.hcmedia.org</a></p><p>Elijah Stacy: <a href="www.elijahjstacy.com" target="_blank" rel="noopener noreferer">www.elijahjstacy.com</a></p><p><br></p><p>Hosted by Adam Malone</p><p>Executive produced by Adam Malone and Cody Chalfan</p><p>Produced by Kyle Friar</p>