
Sobre este pódcast
Navigating the challenges & triumphs of Cornelia de Lange Syndrome (CdLS) and where we explore, learn, and share everything related to CdLS. We will learn from families, clinicians, researchers & educators and those exploring new frontiers relevant to the CdLS community.
17 episodios · education
CdLS Connections
Último episodioEp.#17 💜 Family Series: Marci Dunning - Freya's Mother
Sobre este pódcast
Navigating the challenges & triumphs of Cornelia de Lange Syndrome (CdLS) and where we explore, learn, and share everything related to CdLS. We will learn from families, clinicians, researchers & educators and those exploring new frontiers relevant to the CdLS community.
Episodios recientes
- Ep. #16 💜 Family Series: Maria Watkins & Ella- "Life on M Avenue"14 oct 2025 · 1 h 36 min
- Ep. #15 - 💜 Family Series: Dawn Seitz Rauscher - Team Nikki26 ago 2025 · 2 h 23 min
- Ep. #14 -💜🏥 Clinical Series: Dr. Peggy Marcon- Blenderized G-Tube Feeds for CdLS23 jul 2025 · 36 min
- Ep. #13 - 💜 Family Series: Remembering Tami — A Father’s Story, GI Complications & Advocacy in CdLS3 jul 2025 · 2 h 22 min
- Ep.#12 - 💜 Family Series: Edgar Solis - A Father's Story - Daniel8 jun 2025 · 42 min
- Ep.#11 - 💜 Family Series: Charlotte Nordin - A Mother's Journey & Vera8 jun 2025 · 1 h 11 min
- Ep.#10 - 💜 Family Series: Majda Ficko - A Mother's Journey & Dimitre's Legacy11 nov 2024 · 1 h 27 min
- Ep.#9 - 💜 Family Series: Emily Turner - Brave Heart - Warrior Spirit8 oct 2024 · 26 min
- Ep.#8 - 💜 Family Series: Brenda King - Molecular Testing at Age 33- Leanna's Story29 ago 2024 · 2 h 31 min
- Ep.#7 - 💜 Family Series: Meet Madison - a thriving young woman with CdLS30 may 2024 · 1 h 59 min