USA Today, Synchrony Conf, #EEC2026, Portugal & Family Resources — #CureSYNGAP1 in Action #S10E218

Tuesday, September 8, 2026 — Week 37

DON’T MISS ASO UPDATE Episode 217 came out over the weekend. Don't miss it. There was lots of ASO news in there.https://www.linkedin.com/feed/update/urn:li:activity:7502544874399928322/NATIONAL PRESS

USA TODAY Special-needs care / education crisis — and a SYNGAP1 family featured. Diagnosis and future therapies aren't enough. Families need care, education and support today. https://www.linkedin.com/posts/bernadette-basilico-6924b29a_a-two-year-postdoctoral-position-with-share-7500493855591432192-sOD6/ https://www.usatoday.com/story/life/health-wellness/2026/09/01/kids-special-education-school-shortage-care/90851980007/

ADVOCACY UPDATE

SYNCHRONY — PALO ALTO

KAH + I attended the BRAIN Foundation's Synchrony symposium.

The autism community is starting to wake up to neuroinflammation, and mental health psychiatrists are really working hard on this topic. There are also people looking more at the impact of diet. https://brainfoundation.org/synchrony-symposia/

ILAE #EEC2026 — ATHENS

Virginie + Jaime + Vicky + Katrine representing SYNGAP1 at the 16th European Epilepsy Congress, Sept. 5–9. https://www.ilae.org/eec2026Virginie’s Post: https://www.linkedin.com/posts/virginie-mcnamar_eec2026-ugcPost-7502600886368559105-LPbu/

THINGS YOU CAN DO RIGHT NOW

GENEDX SURVEY

How has getting a SYNGAP1 diagnosis improved your child's care?