HIV: The Morning After

← HIV: The Morning After10 sept. · 50 min

Dr Tristan Barber: Prescription, Patient, Pioneer

Dr Tristan Barber: Prescription, Patient, Pioneer10 sept.50 min

A leading HIV consultant who went from writing prescriptions to needing them in the summer of 2002 - and became the first person living with HIV to lead the British HIV Association.

SummaryTristan Barber was born in Cornwall in 1975, took his A-levels at 16, and arrived in London in September 1992 as a gay man from a rural county where nobody was out. Medical school felt like a small homophobic village. London in the 90s did not. He went to clubs every night, nearly failed his studies from enjoying himself almost too much, and eventually landed his first job in sexual health and HIV at a busy East London clinic in 2002 - the year everything changed.

Towards the end of that rotation, Tristan got sick. A ten-day viral illness in the middle of summer. His GP prescribed antibiotics and didn't ask anything else. Tristan went for an HIV test himself, struggled to find a clinic where he didn't know anyone working, and bumped into an old colleague in the waiting room who asked why he was there. The test was positive. He enrolled in a seroconverter trial at Imperial College - four drugs for three months - and became rapidly undetectable. Then the trial required him to stop treatment, his viral load rebounded, and a small depression set in. That was his summer of 2002.

What followed was a career that took in research at Imperial, clinical trials recycling old drugs for people who had run out of options, an elective in San Francisco where HIV drugs were advertised on bus stops, and fieldwork in rural Nepal supporting doctors who were delivering HIV care with a manual and a telephone line. In 2018, he set up a dedicated HIV and ageing service at the Royal Free Hospital - the first of its kind - built around the idea that your birthday age and your HIV age are not the same thing.

He became the first person living with HIV to chair the British HIV Association, led the campaign to allow people with HIV to donate sperm and eggs, and helped change Civil Aviation Authority rules so commercial pilots with HIV could fly. He is clear-eyed about the mixed messaging in HIV medicine: one pill once a day does not mean it's sorted.

Key Moments[01:26] The summer of 2002 - starting a first job in HIV medicine at a busy East London clinic, and the ten-day illness that made him suspect something was wrong[03:23] Finding somewhere to test - the difficulty of getting an anonymous HIV test when you work in the field, and bumping into a colleague in the waiting room[04:18] The seroconverte