202. Alzheimer's And Down Syndrome - Dr. Brian Skotko

In this episode we revisit with Dr. Brian Skotko to talk about the impact of Alzheimer’s in the Down syndrome community and discuss some proactive steps that may help to improve the long-term wellness of people with Down syndrome.

Down Syndrome Brain Train: https://www.downsyndromebraintrain.com

Down Syndrome Clinic: https://www.dsc2u.org

Tar Heel Reader Book Collection: https://tarheelreader.org

Find A Nutritionist Near You: https://www.eatright.org

Dr. Brian’s Book “Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters”: https://www.amazon.com/Fasten-Seatbelt-Brian-Skotko-Levine/dp/1890627860

Episodes on YouTube: https://www.youtube.com/playlist?list=PLi4R9dL4avnOh5T8VEejTmDL15gKp2i_u

Episode Transcript: https://ifweknewthen701833686.wordpress.com/2026/06/17/202/2/

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Summary:

This episode of If We Knew Then features a returning conversation with Dr. Brian Skotko, Director of the Down Syndrome Program at Massachusetts General Hospital, focusing on Alzheimer’s disease and its impact on the Down syndrome community. Stephen and Lori Saux open the discussion by acknowledging how difficult, but necessary, it is to talk about Alzheimer’s, emphasizing that honest information empowers families to prepare, advocate, and support their loved ones.