#42 Uniting the field to move faster together with Complex Disorders Alliance's Amy Rochlin

Bringing together research across Long Covid, myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), postural orthostatic tachycardia syndrome (POTS), Ehlers-Danlos syndrome (EDS) and co-morbid conditions to deliver faster, patient-specific treatment.

When her daughter became chronically ill overnight at 16, Amy Rochlin was shocked by the lack of effective help. She turned her career in financial services and disease research towards patients like her daughter, joining founder Fidji Simo to lead the Complex Disorders Alliance (CODA) as CEO.

CODA listens to patients, validates their experience, and uses precision medicine and AI to scale funding, research and treatments.

In this episode we discuss:

- How CODA unites scientists, clinicians, charities and pharma to move faster

- Why subtyping and precision medicine could match the right treatment to the right patient

- CODA’s neuroimmune research portfolio, including craniocervical dysfunction (CCD)

- Collaborations in genomics, microclots, immune dysfunction and vagus nerve stimulation

- Why patients belong at the heart of research

CODA works with experts including Mikki Tal, Nancy Klimas, Resia Pretorius and Kevin Tracey, and with organisations including PrecisionLife, the OMF and the Schmidt Initiative for Long Covid.

If you live with Long Covid, ME/CFS, POTS, EDS or another complex chronic illness, this episode shows that serious science and serious investment are coming together on your behalf.

CODA CEO blog: https://www.complexdisorders.org/ceo-blog/chronic-illness-steals-dreams-its-time-to-give-them-back