Über diesen Podcast
On the CDKL5 in Color podcast you'll hear co-hosts Marissa & Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights. Our goal? To weave a tapestry of vibrant community stories. Have a CDKL5 story to share? Get in touch!
45 Folgen · society
CDKL5 in Color
Über diesen Podcast
On the CDKL5 in Color podcast you'll hear co-hosts Marissa & Amanda share lessons learned along the way as parent caregivers to children living with CDKL5 Deficiency Disorder, a rare developmental and epileptic encephalopathy. You’ll also hear voices from other members of the CDKL5 community sharing their experiences and insights. Our goal? To weave a tapestry of vibrant community stories. Have a CDKL5 story to share? Get in touch!
Neue Folgen
- Episode 43: Exploring Caregiver Guilt (Part 2)1. Juni · 34 Min.
- Episode 42: Exploring Caregiver Guilt (Part 1)1. Juni · 29 Min.
- Episode 41: Michal’s Life with Natalia (age 5)23. Mai · 29 Min.
- Episode 40: Let's Talk About Moments of Joy9. Mai · 24 Min.
- Episode 39: Let’s Just Chat!25. Apr. · 29 Min.
- Episode 38: Aditi’s Life with Ria (age 6)12. Apr. · 36 Min.
- Episode 37: Let’s Talk About Gene Therapy28. März · 29 Min.
- Episode 36: Let’s Talk About Bathing Our Kids14. März · 29 Min.
- Episode 35: AI Chat with Cure5 Co-Founder Andreas Borg28. Feb. · 33 Min.
- Episode 34: Kim’s Life with LilyAnna (age 23)14. Feb. · 31 Min.
podlinkr.com/de/cdkl5-in-color
Für ein Plakat oder eine Folie.