
← Patient Advocacy Now6. Okt. 2025 · 41 Min.
Fighting for Answers: The Journey from Patient to Advocate
Fighting for Answers: The Journey from Patient to Advocate
In this episode, Victoria Killian shares her decades-long journey navigating the medical system with chronic illnesses, beginning at age 12 with debilitating back pain. She describes her struggles with missed diagnoses, the eventual discovery of ankylosing spondylitis, setbacks from conflicting medical opinions, and the ongoing search for clarity around a potential connective tissue disorder. Victoria explains how her personal experiences led her to embrace advocacy, eventually becoming a Boa...