Patient Advocacy Now

← Patient Advocacy Now6 okt 2025 · 41 min

Fighting for Answers: The Journey from Patient to Advocate

Fighting for Answers: The Journey from Patient to Advocate6 okt 202541 min

In this episode, Victoria Killian shares her decades-long journey navigating the medical system with chronic illnesses, beginning at age 12 with debilitating back pain. She describes her struggles with missed diagnoses, the eventual discovery of ankylosing spondylitis, setbacks from conflicting medical opinions, and the ongoing search for clarity around a potential connective tissue disorder. Victoria explains how her personal experiences led her to embrace advocacy, eventually becoming a Boa...